|Holding the precious lei presented to her by her beloved (and lovely) Auntie Merle at church today. I only wish you could smell it!|
|I really, really, really LOVE my dad!|
|…and my puppy really loves me!|
|Easter 2011….the boys still hate taking photos!|
With 3/4 of my sons….we missed you Chase!!
Easter provides me, at last, respite from a week that has left me feeling like I’ve lived through seven days of spin cycle. I don’t think it a coincidence that as I celebrate the sacrifice that has led to new birth (Oh, Death…just where is your sting???), the birth of new insights, paradigms, outlooks, and plans with regard to Abbie’s body is calling us to somber recognition, determined sacrifice and faith-based rejoicing.
I met Leonid Blyum, the inventor of ABR, and researcher Mark Driscoll, at their hotel one week ago. I was slated to introduce them at the Pacific Rim International Conference on Disabilities the next day, so I wanted to touch base to see if there were any particular things they wanted me to highlight.
OK — that was part of the reason. The more honest explanation is that I wanted to check them out. I had invited numerous people to the conference to hear them, and wanted to know ahead of time if I’d made a huge mistake. Within five minutes, those concerns evaporated, and I knew I was in the company of men who were going to stretch my mind, and hopefully, change Abbie’s path.
I have learned so much this week, and feel compelled to share it with other brain-injury families. So, I will break it into installments. Yes, it is about Abbie, but from the beginning, where possible, Ray and I have committed to make this journey matter for ALL children who are in Abbie’s position. Thankfully, what I learned about Abbie this week translates very easily to all children recovering from brain injuries.
I will be writing about: The “Lavish” versus “Thrifty” approaches to rehabilitation [which explains the basis for ABR, and also why traditional rehab doesn’t work for severely impacted people]; the differences between CP and acquired brain injuries in regards to physical rehab; the value of stillness; why we can’t solve the secretion problem; Abbie’s biggest challenge (which is not unique to her), “Fake Strength”, and where we go from here, as a family and as a state. So, stayed tuned for all that.
On this day, though, our thoughts go to our families spread out on the mainland, and to friends we’ve been blessed to have far and wide. With such a profound reason to celebrate, we wish we could all be together today….but, that Day is coming!!