Although my updates have become (very) intermittent, I always like to write something on May 10th —  the date we agreed to disconnect life support and allow our baby girl to go to Heaven.  This day reminds me every … Continue reading →

It’s been an incredibly happy day fully of sunshine and laughter.  Not so different from how May 3rd started out for us nine years ago.  But, this evening, instead of being in the PICU praying for our sweet girl to … Continue reading →

  An entire season has passed since the last update, and so much has happened that words will surely fail me.  So, I turn to pictures, trusting the communication of thousands of words each will make up for lost time. … Continue reading →

Each year, as May 3rd approaches, I wonder how I am going to express what the past, that day, and the future feel like as we remember losing Abbie and getting her back again. I had number of themes running … Continue reading →

On Monday Abbie’s therapists totally changed the way she drives her chair.  Her seat has gotten torqued (long story), which forces her to turn to the left a bit.  This positioning makes it almost impossible for her to activate the … Continue reading →

My recent trip to Montreal was life-changing for me.  Not only as “Abbie’s Mom”,  as “Neurotrauma Caregiver” or even “Avid Amateur Scientist” (I had expected impact in all these areas), but as Tiffany…a person who existed before Abbie, before her … Continue reading →

So many months have passed that it is difficult to know how, and at what point in time, I should begin this update. Most importantly, Abbie is doing very, very well.  The addition of a Cough Assist machine to our … Continue reading →

When Ray flew to Orlando on 12/3, I thought I would use the upcoming week to get Christmas “done”, so that we could just enjoy good family time the rest of the month. I did end up doing a lot … Continue reading →

We had just finished up another wonderful ride on Lizzy yesterday (who is not the horse in the photo), when Patty, Abbie’s riding buddy mentioned that the riding center, a non-profit organization, had raised $43 on Good Search. I was … Continue reading →

We’ve been walking this path for so long now, that I have found it easier on my heart to no longer focus on the “BIG” things….talking, walking, eating, etc., and put my energy and attention into how to make each … Continue reading →